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Brian Herbst is the public relations director of a foundation in his late uncle's name. Herbst appears in his uncle's New York City firefighter uniform.
Photo by Chris Keane/The University Times

Nephew honors lost uncle's life

Foundation in firefighter's name aids autistic children


by Cynthia Everson
The University Times
September 12, 2003


Brian Herbst, a junior at UNC Charlotte, never thought his uncle would fall victim to a terrorist attack.
Chief of hazardous materials operations at the New York City Fire Department, John "Jack" Fanning served on domestic preparedness panels from Maryland to Harvard.

He was an anti-terroism expert who was among the first to respond to the Oklahoma City bombing in 1995 and the Atlanta bombing in 1996.

Four months prior to Sept. 11, 2001, Fanning informed the Senate the New York City Fire Department was not equipped to handle an extensive terrorist attack. Yet when the trade tower bombings of Sept. 11 unfolded, Fanning was again among the first to respond.

Unfortunately, Fanning was also among the 343 firefighters that gave their lives during this one response.

At first, Fanning's family held out hope that he was still alive. Herbst said he thought Fanning was "so far up in the fire department that he wouldn't even be on the scene."

However, after a couple of days passed and no phone calls from Fanning, the family began to realize his chances of being alive were slim.

One New York City firefighter told them Fanning was last seen helping people out in the lobby after setting up a command center at the second tower.

"Fanning was the most humble person," said Herbst. "He was a soft-spoken, great guy. He never had a bad word to say about anybody."

When people asked Fanning what he did for a living, he did not mention his medals or awards.

"He just said, 'I'm a firefighter,'" said Herbst.

Fanning, despite his humility, was much more than a firefighter. He was also a man of character, service and vision. That vision centered around his two youngest children, Sean, 15, and Patrick, 7, both of whom have low-functioning autism.

"At the end of August 2001, Jack told me that if we won the lottery, [we would] buy a group home for autistic kids," said Fanning's wife, Maureen.

His vision became the cornerstone for what is now called the Jack Fanning Memorial Foundation, a not-for-profit group comprised of families and friends of children with autism.

"One of Jack's last conversations was about the foundation," said Maureen.

In Fanning's obituary, the family requested donations for the foundation in lieu of flowers.

Such individual donations helped the Jack Fanning Memorial Foundation develop into an organization to help autistic children throughout the United States.

The Jack Fanning Memorial Foundation moves toward fulfilling that dream in honor of the man who first envisioned it.

The foundation recently received state approval for two six-bed group homes. The first of which is anticipated to be opened later this year and be called the "Jack Fanning House."

Herbst is the public relations director of the Jack Fanning Memorial Foundation. To Herbst, the Jack Fanning Memorial Foundation is important, not just because it honors his uncle, but also because the needs of children with autism are so great.

"They need to be looked after all the time," said Herbst. "Once they get to be a certain age, they need to be sent to homes where they can be cared for by people who have the specialized training necessary to look after them."

The lack of funding for such programs and homes leaves many autistic children without the care they need.

"There are just not enough opportunities out there for them," said Herbst. "There are not enough houses. There are not enough people. The needs aren't being met."

The Jack Fanning Memorial Foundation is designed to try to meet some of those needs, for a few children at a time.

According to Maureen, one out of 150 people are diagnosed with autism.

She described autistic children as being self-injurious, aggressive and having no fear of injury. Such traits require one-on-one intervention from the time they are small.

Fanning and his wife, Maureen both worked full-time and juggled the responsibilities of caring for two autistic children. Maureen hopes the foundation will provide assistance for families like theirs who need help with meeting the constant needs of autistic children.

"Sean is now in a home where he can receive the specialized care that he needs, that he has needed for six or seven years," said Herbst of one of his cousins.

The Jack Fanning House is the most immediate goal of the Jack Fanning Memorial Foundation, but they have many other goals as well.

Currently plans are underway for a Web site and fundraisers. The foundation also contributes to other national programs for autism treatment, education and research.

Anyone who would like to make a tax-deductible donation to the Jack Fanning Memorial Foundation may mail it to Jack Fanning Memorial Foundation, 307 Bordeaux Lane, Cary, N.C. 27511.

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